Welcome to Christian World..

(AUGUST 21, 2011)
She is precious angel from heaven above will be welcomed into God's family.. A baby is a miracle sent from heaven above, to touch our lives with wonder, to fill our hearts with love.. Christianity isn't about rules and regulations to follow..  It is about a relationship with the Lord Jesus Christ.. :) I am so happy that as early as 3 months young Dylan became a christian like us.. :) 

Medication Maintenance for a LIFETIME..

June  1, 2013

-was the start of her maintenance. Her Dr. refer her to maintain the PHENOBARBITAL an anti-convulsant, used as an antiepileptic agent to control tonic-clonic and partial seizures.. It's a small tablet that should be take in 100 days or in 3months.. She should take it before sleeping.. Dylan is very alive and very happy, she's not the type of "HARD-TO-HANDLE" baby.. And she never act like having a convulsion ever since UNTIL she takes this kind of maintenance.. From the very first night she take that med, she was uneasy, uncomfortable, and even if she was so sleepy she can't sleep because of that medicine, it is always early in the morning like 5am or 6am that's the time she fell asleep instead sleeping like 10pm or 11pm.. Every night when she take that med she always feel that uneasiness and vice versa, there's 1 night that she was like having a convulsion, she easily got angered or annoyed whenever I talked to her.. Many nights she keeps on shouting.. I feel her, as a mother i know she don't like the med she's taking.. FINALLY 3months is over having hard time on taking that med... AND now back to her Neurologist Dr.Bayana..

This is the phenobarbital drug, it is not that much expensive :) Thank's to God..

Last Week of August, 2013

As we were in the Doctors Clinic at CUMC in Cagayan de Oro City as the follow-up check up begins, conversation starts I told the Dr. of what was Dylan's behavior during maintaining that drug for three months, and YES Finally he changed PHENOBARBITAL to TEGRETOL, an anti-convulsant/mood stabilizing Agent.. Honestly the Doctor is confused whether he will changed or not due to expensiveness of the new maintenance.. So, I ask first if how long it takes the new medicine maintenance, He said (while calculating) it is good for 2 months, so I said "Okey".. We were not that poor but not that rich.. Having the Doctor's receipt on my hand, I feel so hopeful because I am hoping Dylan would love her new anti-convulsant.. Then I buy just One bottle of Tegretol.. Luckily she LOVES it, whenever she take this med after a couple of minutes she fall asleep.. She doses it 2 times a day 2.5ml in the morning and 2.5ml at night, a total of 5ml everyday, which contains a white suspension of 100mg Carbamazepine.. 

After two weeks I was little disappointed because she is running out of her meds.. Tegretol was actually good for 20days, as i know that the Dr.Bayana told me it will lasts for 2months.. Well, Tegretol is only 100ml and of course 5ml per day so, it really takes only good for 20days.. But I'm still blessed.. God is good, ALL the time.. and ALL the time, God is good.. He never let me down and I can always FIND ways with HIS help.. :) I am so thankful for her new medicine, because Dylan loves it so much unlike the first med.. :)

Dylan's 2nd Birthday! :)

(MARCH 19, 2013)
Since I have work that time during her birthday, I wish her full of happiness so as long as I could provide her a party that I want to cherish with her birthday I make a little party for her..  I love you so my ever dear Dylaney Angelique.. :) :-*

Outside the church..

With Papa inside the church..

With Mama..

Cake, Lechon, Other Recipes, Party Bags.. 

Picture during the party with some of her Godparents..

Dylan's 1st Bday :))

March 19 was the official date of the birthday of my baby Dylaney Angelique but was celebrated 18th of March. Sunday due to some relatives, friends, godparents have works on monday.. :))

-these photos taken from ronan's cam (friend).. thanks nan..

-the pictures of our cam was been corrupted.. SO SAD all the pictures of foods, moments of Baby Dylan blowing the candle were GONE.. :((

Only 1 picture of her captured by my friends cam and she was sleeping at this time..

That's me her mother, the food was at my back hmmmm.

These people are her male Godparents..

Because i was frustrated on her celebration i can't accept the FACT to myself as a mother that my baby would have no pictures on her 1st birthday so, we celebrate again on her REAL BIRTHDATE March 19. But not bonggacious as on Sunday's food.. This is just for the family. ;) 

Dylaney :)

with my LITTLE ANGEL at 1yr.Old

These are the foods.. :))

with ate Ella..

CREATININE TEST & THE RESULT

(WAY BACK JANUARY 11, 2013 at CAGAYAN de ORO CITY)

-tiring day..! but it's all worth it..it's been a really busy day for me, Greg, baby Dylan and my sister April and of course Ellaling my niece.. we've done to schedule Dylan for MRI and it would be on Tuesday, & in Monday, pass all her requirements such as the equipments, contrast, creatinine result.. Earlier while were in the laboratory I thank God for making Dylan so brave and strong, her result for creatinine was LOW 0.48mg/dL i was so sad to hear it coz i think the MRI would be postpone due to her creatinine result but when I ran faster to the Dr. to see her result, the Dr. said to me that it is okey and there's nothing to worry if it's low or high, it is much better that it's low as long as the patient still young.. and I find it crying back to my companion for it is possible to have Dylan an MRI examination.. THANK YOU SO MUCH LORD..

Here she is before the creatinine test :))

My Precious Little Angel

March 19, 2011

I gave birth to my angel named 

DYLANEY ANGELIQUE, 
through cesarean section because she
was one of breech babies..

All i know,  She is SPECIAL BABY. She was on my womb for 9months 

but even if I'm a 9months pregnant i still look 6months pregnant. 

That makes me wonder why.?

The Scar on her face was the cord coil, because of that cord in her face, she was not fully developed in my womb. The cord that connects between us was so small and thin, for that reason she was not able to fully developed because of the food that I ate was not been relay to her. 

She can't see, she HAS NO left eye, she HAS the right eye 

but still can't see coz still not fully developed and it's blurry.

I thought, that is only my problem but when she was 5months

I wonder why her head was getting a little bit bigger for her age, 

that makes me feel uneasy.. 

At first i can't afford a specialist doctor to know what was really her condition, but 1year and 9months later through the HELP of my friends, relatives, family, in-laws, and who supported my "BUY FOR A CAUSE" thingy, she finally gone through MRI Examination.. For 5hours, inside the MRI room she was pretty good cooperative but I was the one who felt nervous but after the examination it all went well. 

1week later we have the result of the said examination and she was confirmed that she is one of 10,000 babies who has SEPTO-OPTIC DYSPLASIA.

Yes, she is special. However it is a disorder of early brain development. 

Although its signs and symptoms vary, this condition is traditionally defined by three characteristic features: underdevelopment (hypoplasia) of the optic nerve, abnormal formation of structures along the midline of the brain, and pituitary hypoplasia. The doctor says she also has HYDROCEPHALUS, 

I am so sad to hear that but I'm still thanking God because the one that hydro she has was INACTIVE. It was called hydrocephalus for the reason that her brain lacks, instead to have a full developed brain, she only has few and the other portion of her brain were covered by water..

She is very different from other babies who has hydrocephalus, because now her head maintains its size. And I am so very THANKFUL for that..

And after a month she undergo another laboratory test which is EEG (electroencephalogram), which the electrical activity of her brain is RECORDED, where her head was full of 20 wires to be exact for enable to know what exactly the maintenance medicine she should take.. And last June 2013, she started her maintenance medicine Pheno-Barbital but seriously she don't like her 1st medication maintenance but it's okey.. :) She often sees her doctor Once in Three Months :)). And as of September 2013 her maintenance medicine is

TEGRETOL.. and she loves it.. :))

BUT despite of her disorder I'm proud to say that she is HEALTHY, HAPPY, BRAVE and very STRONG. And she is NOT one of those "HARD-TO-HANDLE" babies.. I am so blessed. I am so lucky and happy to have a daughter like her. I so love her so much. I love you my baby, my strength, my angel, my EVERYTHING.. You mean the WORLD to me.. ILOVEYOUSOMUCH..

-from MOM

This picture was taken during on her 2nd birthday March 19, 2013 at Sta.Rita Parish Church. 

she maybe special but i never treat her different from other kids, she lives in a normal way like other babies do.. :) 

Bed time for us.. :) Cuddling time.. 

After watching the HEALING EUCHARIST.. lovely! :)) 

My Angel is Wide Awake.. ;)

 It's 2am already and look she is still so lively and wants to play with her hands, listening to the voice of mickey mouse, she loves mickey esp. when they song the hotdog song, she giggles.. ;)) while i'm so sleepy, but that's what mother does always accompany her children.. ;)) no time-outs.. no break.. a mom is always a mom.. and i love it, and i love her so much.. My strength, my love, my angel, my hope, my everything: My Dylaney Angelique.. i love you so much baby.. mwah! :*