My Precious: August 2013

(WAY BACK JANUARY 11, 2013 at CAGAYAN de ORO CITY)

-tiring day..! but it's all worth it..it's been a really busy day for me, Greg, baby Dylan and my sister April and of course Ellaling my niece.. we've done to schedule Dylan for MRI and it would be on Tuesday, & in Monday, pass all her requirements such as the equipments, contrast, creatinine result.. Earlier while were in the laboratory I thank God for making Dylan so brave and strong, her result for creatinine was LOW 0.48mg/dL i was so sad to hear it coz i think the MRI would be postpone due to her creatinine result but when I ran faster to the Dr. to see her result, the Dr. said to me that it is okey and there's nothing to worry if it's low or high, it is much better that it's low as long as the patient still young.. and I find it crying back to my companion for it is possible to have Dylan an MRI examination.. THANK YOU SO MUCH LORD..

Here she is before the creatinine test :))

March 19, 2011

I gave birth to my angel named

DYLANEY ANGELIQUE,
through cesarean section because she
was one of breech babies..

All i know, She is SPECIAL BABY. She was on my womb for 9months

but even if I'm a 9months pregnant i still look 6months pregnant.

That makes me wonder why.?

The Scar on her face was the cord coil, because of that cord in her face, she was not fully developed in my womb. The cord that connects between us was so small and thin, for that reason she was not able to fully developed because of the food that I ate was not been relay to her.

She can't see, she HAS NO left eye, she HAS the right eye

but still can't see coz still not fully developed and it's blurry.

I thought, that is only my problem but when she was 5months

I wonder why her head was getting a little bit bigger for her age,

that makes me feel uneasy..

At first i can't afford a specialist doctor to know what was really her condition, but 1year and 9months later through the HELP of my friends, relatives, family, in-laws, and who supported my "BUY FOR A CAUSE" thingy, she finally gone through MRI Examination.. For 5hours, inside the MRI room she was pretty good cooperative but I was the one who felt nervous but after the examination it all went well.

1week later we have the result of the said examination and she was confirmed that she is one of 10,000 babies who has SEPTO-OPTIC DYSPLASIA.

Yes, she is special. However it is a disorder of early brain development.

Although its signs and symptoms vary, this condition is traditionally defined by three characteristic features: underdevelopment (hypoplasia) of the optic nerve, abnormal formation of structures along the midline of the brain, and pituitary hypoplasia. The doctor says she also has HYDROCEPHALUS,

I am so sad to hear that but I'm still thanking God because the one that hydro she has was INACTIVE. It was called hydrocephalus for the reason that her brain lacks, instead to have a full developed brain, she only has few and the other portion of her brain were covered by water..

She is very different from other babies who has hydrocephalus, because now her head maintains its size. And I am so very THANKFUL for that..

And after a month she undergo another laboratory test which is EEG (electroencephalogram), which the electrical activity of her brain is RECORDED, where her head was full of 20 wires to be exact for enable to know what exactly the maintenance medicine she should take.. And last June 2013, she started her maintenance medicine Pheno-Barbital but seriously she don't like her 1st medication maintenance but it's okey.. :) She often sees her doctor Once in Three Months :)). And as of September 2013 her maintenance medicine is

TEGRETOL.. and she loves it.. :))

BUT despite of her disorder I'm proud to say that she is HEALTHY, HAPPY, BRAVE and very STRONG. And she is NOT one of those "HARD-TO-HANDLE" babies.. I am so blessed. I am so lucky and happy to have a daughter like her. I so love her so much. I love you my baby, my strength, my angel, my EVERYTHING.. You mean the WORLD to me.. ILOVEYOUSOMUCH..

-from MOM